For parents of high school Juniors and Seniors with complex health needs, the beginning of the school year isn’t just about textbooks and class schedules-it’s also the ideal time to start preparing for a different kind of transition: from pediatric to adult healthcare. This can feel daunting, but empowering your young adult to take charge of their health is one of the most important steps toward true independence.

Here’s why a holistic approach matters and a few practical steps you can take right now.

Why This Transition Is a Big Deal 

For adolescents and young adults (ages 16-25), this is a critical period of identity exploration and working toward independence. A brain injury or chronic illness can profoundly disrupt this journey, making it harder to build confidence and new relationships. By giving them ownership of their health, you’re not just teaching them to manage appointments; you’re 

helping them build the skills and self-assurance needed to navigate challenges of adulthood.

1. The "Healthcare Backpack"

Help your child create a physical binder or digital file that holds all their vital health information. Think of it as their "go bag" for their health.

What to include:

A list of all diagnoses, surgeries, and significant health events.

A master list of current medications with dosages and a schedule.

Contact information for all doctors, specialists, and pharmacies.

A copy of their health insurance card and contact information for the provider.

This simple act gives them a tangible tool that is theirs alone, fostering a sense of responsibility.

2. Practice Makes Progress

You don't have to turn over everything at once. This school year, start with small, manageable tasks and gradually increase the responsibility.

Try starting with these:

The Pharmacy: Ask them to be the one to call in a prescription refill.

The Schedule: Have them schedule their next follow-up appointment with a specialist. You can be right there with them, but let them make the call and say the words.

The Story: Encourage them to practice explaining their diagnosis and needs in a concise, confident way. This will be invaluable when they meet new doctors or need to advocate for themselves.

3. The "Team" Meeting

Make a conscious effort to include your child in conversations with their medical team. During their next doctor's appointment, encourage them to ask questions and take the lead in explaining how they’ve been feeling. This shifts the dynamic from you speaking for them to them speaking for themselves. This active participation helps them better understand their own body and needs.

As they become more comfortable, it’s also important to discuss the option of having a few minutes of solo time with the doctor. This private time allows them to ask personal questions and express concerns that they might not want to share in front of you. Likewise, let your child know and remind the healthcare provider, it is the child’s right to have you in the room for support, emphasizing that the most important thing is that your child feels heard and respected in their own healthcare decisions.

Looking Ahead to Independence

This journey is as much about emotional and psychological growth as it is about physical health. By intentionally preparing for this transition now, you are supporting your child's holistic well-being and paving the way for a smoother, more confident move into adulthood. It's a team effort, and starting early is the key to success and a life-time of good health habits.

https://www.gotabi.org/post/preparing-for-independence-a-parent-s-guide-to-assisting-the-adolescent-s-healthcare-transition

https://www.gotabi.org/